| Bipolar:
Run For Your Life From The Mental Illness Ghetto
Psychiatric rehabilitation programs can be a hidden trap |
‘Who put the boys in the club house? You did,
baby, you did.’
The song ‘Keep a Lid on Things’
by the Crash Test Dummies sums it up. Psychiatric
rehabilitation organisations are often there to simply keep a
lid on things (clients’ behaviour) rather than to get them
back in the mainstream of society. Their stated aims are often
vastly different from the actual outcomes.
Does the ghetto keep you sick? So it seems. Last year an Australian
research team interviewed people who had bipolar disorder, and
one of the findings was stunning—people who did not use
psychiatric rehabilitation services tended to stay well longer
than those who did*.
If you’re coming out of a bipolar crisis, perhaps just
out of hospital, it’s worth questioning the value of rehabilitation.
If the only place you go is the mental health clinic, you surround
yourself with others who are sick. It becomes comfortable, you
make friends, there’s no challenge, and you will find over
time that you become nervous about venturing into mainstream activities,
like ringing up about a job, or going back to your sporting club.
The longer you are inside the ghetto the harder it is to break
out. Your confidence disappears. People share stories of being
victimised and discriminated against and this shores up your growing
sense that it’s too hard ‘out there’. You conclude
you should stay in rehab.
The religion editor of my city’s broadsheet wrote this
last month:
‘Victimhood is a bad address. It's a dangerous
and delusory place and definitely the wrong side of the tracks.
Unfortunately, far too many people live there.
Even if you really are a victim, you have to move
out. Victimhood offers an odd but counterfeit comfort, where nothing
is your own responsibility, where life is something that is done
to you by others, and is beyond your control, yet you can enjoy
the moral high ground... It's a short step from victimhood to
paranoia.’**
Zwartz was writing about race riots in Sydney, but these words
resonated with my experience of the mental health lobby. Victimhood
leads to a sense of futility, a wariness that prevents fair assertion
of our wishes. Countless so-called advocacy organizations work
in the short term, never daring to jeopardize their funding by
pursuing the big picture, the dream.
‘Consumer’ organizations fare no better. Consumer
organizations are beset with ineptitude not because of illness,
nor because of lack of skills and intelligence. The one thing
that undoes the political work of consumer organizations is the
prevalence of victimhood. These organizations include many people
who have been actually victimized, but too many are stuck in the
ghetto and exhibit ongoing ‘victim behavior’. If you
cast yourself as a victim, your requests will never be taken seriously—you’re
too easy to say ‘no’ to.
I believe this is a reason that mental health funding around
the developed world is far lower than funding for the equivalent
level of burden of disease in general health. For example, In
Australia it is only 8% of the total health budget compared with
the OCED average of 12%.
SANE Australia reported last year that stigma was the villain
of the piece, and produced startling evidence to support the view.
In Australia there have been eight State or national inquiries
in the last twelve years. Each time puny progress is made but
the underlying flaw (lack of funding) is perpetuated. As Einstein
supposedly said: ‘Insanity is doing the same thing over
and over again and expecting different results.’ We need
to do something different. Here is my suggestion:
- Get out of the ghetto and into the mainstream.
- Do stuff that doesn’t involve mental health
- When you have gotten rid of your victim outlook, start demanding
fair funding for mental health in your country. Follow up, don’t
take no for an answer, and incite all your friends and relations
to do the same.
- If your consumer organisation has a victim outlook, you could
try to change it, but expect resistance. People can be codependent
on their organizations.
* Russell, S J and Browne, J L 'Staying
well with bipolar disorder' Australian & New Zealand
Journal of Psychiatry 2005; 39:187–193.
** Barney Zwartz, The Age,
Melbourne Australia 15 December 2005
Madeleine Kelly is the author
of the prizewinning book Bipolar and the Art of Roller-coaster
Riding (Two Trees Media ISBN 0-646-44939-7).
More information about managing bipolar disorder can be found
at http://www.beatbipolar.com.
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